So I lied a little…

The military was supposed to teach me never to “put myself on report,” not to admit to an error: if an act were truly an egregious offense, you would be caught. Otherwise, getting away with something was fair game. More honest tax payer money wasted on my military education…

If you look back through these blogs to the ancient date of Friday, January 31, 2014 (yes, only two and a half months ago), there is a well-meaning blog with the inspirational heading that reads:

Personal strategies learned the hard way for others afflicted with Young-Onset Parkinson’s.

Well, mea culpa (it appears Latin is destined to be my second language, maybe my first), again.

It’s not the points made that a now sage-75-days-older-in-life-experience-me takes issue with, but rather the embarrassingly specific examples used in “Pete’s perfect universe.” Here is what it (i.e. “I”) said:

“Here are some personal examples. I still serve on the local school board, often run public meetings, and have given two graduation speeches (a third one is coming up in June) to about 5,000 people. I also occasionally have the opportunity to present on scuba diving and writing to at times hundreds of strangers in different parts of the country. Just traveling to these locales can be a physical challenge.

It is not easy. I always have second thoughts before such events, I’m always scared and stressed, and so far, I have always followed through anyway, usually with my walking canes nearby. But guess what – so far, I have never had to use them: just as it was prior to PD, the bigger the challenge, the greater the reward.”

Anybody who has taken on real personal challenge knows that it’s not the direct, in your face threat that will get you; it’s the simple things, in this case the statements uttered in apparent total ignorance of life’s recent and not so recent jovial retributions. Here is what happened.

In February, I traveled to the Midwest’s largest Dive/Travel Expo, “Our World Underwater,” to speak on the Andrea Doria. I was scheduled for two separate, 35 minute, no-notes PowerPoint presentations, each slated for the last daytime seminar slot of their respective days, Saturday and Sunday (start time 3:15). I jumped at the opportunity.

I knew this would be a big problem five months earlier when I received the invitation to speak; 3:15 Midwest time – 1:15 pm West Coast time – was my absolute lowest point. On most days, I could barely move for the hour before and after 3:15, but actually believing that snapshots of life hold true five months later – at least if you have Parkinson’s – I replied in the affirmative.

I never mentioned a word about the timing of the event to my gracious Midwest hosts, who would have undoubtedly made other arrangements to accommodate me if they had only known what an intimidatingly exhausting challenge it presented.

Things change with time. So what was the end result?

I spent months attempting to adjust my round the clock medication routine, altered my life style in an attempt to change my severe “down” time by just one or two hours, and actually tried to live “right.” Here’s what happened.

Saturday: I give a reasonable presentation, which is great, because there’s a bunch of world reknowned long time deep wreck divers in the 100 person crowd who are well versed in what the heck they are talking about, as opposed to a long dormant pretender like me. And they are not unkind in their critique, for which I am genuinely and eternally grateful.

Sunday: I hit a wall. Despite not going to the film festival and instead catching an honest 3-4 hours of sleep (pretty much a normal night), I got big-time off mid presentation and literally fell apart. I didn’t quit, but it wasn’t pretty. The good news was that there were only 25 in attendance. The bad news was that they were 25 great people who had paid good money to listen to me, a fact which – all kidding aside – simply awes me, disappoints them, and teaches a good lesson.

The lesson learned was one I thought pretty much nailed down after writing Setting the Hook: Soulful challenges are not static and go the direction that is right, not necessarily the one that is desired.

Why bring this up now? As an aspirant to higher primate decision making skills, I made a call tonight in regard to the first personal challenge listed in above embarrassing quote:

“(I) often run public meetings, and have given two graduation speeches (a third one is coming up in June) to about 5,000 people.”

It became clear to me that my Parkinson’s was a distraction at best during school board meetings and my communication skills (verbal) were getting untenable. I stepped down from the Presidency, but opted to stay on the board (wait for it, here’s where I learn something…) until something else changes to make that a bad idea.

And I feel great. Folks (not that many – it’s a school board meeting, for crying out loud!) got to see how things really are for me, I sort of relaxed and only expended a modicum of energy so as not to freak out too many people, and the meeting was far more effective than if I had been still running things. That was the reason I got involved in the first place, to do good (just like Underdog) and now my place has changed, and that’s all very, very good.

Oh, and did I mention that I’ve got a new challenge? One that involves long hours on the boat with the new sonar two of my best friends gave to me (yeah, I know how to play this…)? Stay tuned, probably no diving for me, but who knows where it will lead…

Life can be a shaky, writhy, pain-in-the-butt, but that’s part of what makes it so good.

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